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    Last Updated: 01/09/2026

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    MediFind found 1330 doctor with experience in Danon Disease. Of these, 1093 are Experienced, 200 are Advanced, 30 are Distinguished and 7 are Elite.

    Location
    LocationClose
    1,330 providers found
      Barry Greenberg
      Elite in Danon Disease
      Elite in Danon Disease

      Office

      9434 Medical Center Dr, 
      La Jolla, CA 
      Languages Spoken:
      English

      Barry Greenberg is a Cardiologist in La Jolla, California. Dr. Greenberg is rated as an Elite provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Heart Failure, Danon Disease, Heart Failure with Preserved Ejection Fraction (HFpEF), Heart Transplant, and Cardiac Ablation.

      Elite in Danon Disease
      Elite in Danon Disease

      University Of Colorado Hospital

      12605 E 16th Ave, 
      Aurora,, CO 
      Languages Spoken:
      English

      Luisa Mestroni is a Cardiologist in Aurora,, Colorado. Dr. Mestroni is rated as an Elite provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Dilated Cardiomyopathy (DCM), Familial Dilated Cardiomyopathy, Cardiomyopathy, Heart Transplant, and Aortic Valve Replacement.

      Mei-tsi B. Lawing
      Advanced in Danon Disease
      Family Medicine
      Advanced in Danon Disease
      Family Medicine

      Atrium Health Primary Care One Health Family Medicine Reese Blvd.

      13620 Reese Blvd., E., Suite 125, 
      Huntersville, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Mei-tsi Lawing is a primary care provider, practicing in Family Medicine in Huntersville, North Carolina. Dr. Lawing is rated as an Advanced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Danon Disease, Pompe Disease, Transient Global Amnesia, and Type 2 Diabetes (T2D). Dr. Lawing is currently accepting new patients.

      Learn about our expert tiers
      Elite in Danon Disease
      Elite in Danon Disease
      Nara-shi, JP 

      Kazuma Sugie practices in Nara-shi, Japan. Mr. Sugie is rated as an Elite expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Danon Disease, Myositis, Inclusion Body Myositis, Cytoplasmic Body Myopathy, and Thrombectomy.

      Elite in Danon Disease
      Medical Genetics
      Elite in Danon Disease
      Medical Genetics

      University Physicians Incorporated

      12605 E 16th Ave, Uchealth Anschutz Medical, 
      Aurora, CO 
      Languages Spoken:
      English
      Offers Telehealth

      Matthew Taylor is a Medical Genetics provider in Aurora, Colorado. Dr. Taylor is rated as an Elite provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Danon Disease, Gaucher Disease Type 1, Gaucher Disease, and Fabry Disease.

      Elite in Danon Disease
      Elite in Danon Disease
      Tokyo, JP 

      Ichizo Nishino practices in Tokyo, Japan. Nishino is rated as an Elite expert by MediFind in the treatment of Danon Disease. Their top areas of expertise are Necrotizing Myopathy (NM), Danon Disease, Myositis, Inclusion Body Myositis, and Thrombectomy.

      Elite in Danon Disease
      Elite in Danon Disease
      Prague, PR, CZ 

      Filip Majer practices in Prague, Czech Republic. Mr. Majer is rated as an Elite expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Danon Disease, Brachydactyly Type B, Retinopathy Pigmentary Mental Retardation, and Cardiomyopathy.

      Elite in Danon Disease
      Elite in Danon Disease
      Udine, IT 

      Daniela Miani practices in Udine, Italy. Ms. Miani is rated as an Elite expert by MediFind in the treatment of Danon Disease. Her top areas of expertise are Danon Disease, Cardiomyopathy, Dilated Cardiomyopathy (DCM), Heart Failure, and Heart Transplant.

      Nasir Z. Sulemanjee
      Experienced in Danon Disease
      Advanced Heart Failure and Transplant Cardiology
      Experienced in Danon Disease
      Advanced Heart Failure and Transplant Cardiology

      Tendick Center For Advanced Heart Failure Therapies

      2900 W Oklahoma Ave 4th Fl Galleria, 
      Milwaukee, WI 
      Languages Spoken:
      English, Hindi, Urdu

      Nasir Sulemanjee is an Advanced Heart Failure and Transplant Cardiologist in Milwaukee, Wisconsin. Dr. Sulemanjee is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Cardiomyopathy, Pulmonary Veno-Occlusive Disease, Arrhythmogenic Right Ventricular Cardiomyopathy, Heart Transplant, and Lung Transplant.

      Jay D. Varrato
      Distinguished in Danon Disease
      Distinguished in Danon Disease

      LVH Neurology-1250 Cedar Crest

      1250 S Cedar Crest Blvd, Suite 405, 
      Allentown, PA 
      Languages Spoken:
      English

      Jay Varrato is a Neurologist in Allentown, Pennsylvania. Dr. Varrato is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Danon Disease, Pompe Disease, Epilepsy, and Myasthenia Gravis.

      Cheri A. Fadlon
      Distinguished in Danon Disease
      Distinguished in Danon Disease

      LVH Cardiology-1250 Cedar Crest

      1250 S Cedar Crest Blvd, Suite 300, 
      Allentown, PA 
      Languages Spoken:
      English

      Cheri Fadlon is a Cardiologist in Allentown, Pennsylvania. Dr. Fadlon is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Heart Failure with Preserved Ejection Fraction (HFpEF), Danon Disease, Pompe Disease, and Ectopic Heartbeat.

      Experienced in Danon Disease
      Experienced in Danon Disease

      Vanderbilt Medical Group- Teleneurology

      1161 21st Ave South, A-0118 Medical Center North, 
      Nashville, TN 
      Languages Spoken:
      English
      Offers Telehealth

      . Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Myasthenia Gravis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy (SMA), Guillain-Barre Syndrome, and Gamma Knife Radiosurgery.

      Distinguished in Danon Disease
      Cardiology
      Distinguished in Danon Disease
      Cardiology

      University Of California San Diego Jacobs Medical Center

      9300 Campus Point Dr, 
      La Jolla, CA 
      Languages Spoken:
      English

      Andrew Kahn is a Cardiologist in La Jolla, California. Dr. Kahn is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Danon Disease, Coronary Artery Aneurysm, Kawasaki Disease, Heart Bypass Surgery, and Coronary Artery Bypass Graft (CABG).

      Distinguished in Danon Disease
      Distinguished in Danon Disease

      St. Mary's Neurology Associates

      99 Campus Ave Ste 402, 
      Lewiston, ME 
      Languages Spoken:
      English

      Carl Robinson is a Neurologist in Lewiston, Maine. Dr. Robinson is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Migraine, Danon Disease, Pompe Disease, and Peripheral Neuropathy.

      Distinguished in Danon Disease
      Cardiology
      Distinguished in Danon Disease
      Cardiology

      UC San Diego

      200 W Arbor Dr, 
      San Diego, CA 
      Experience:
      10+ years
      Languages Spoken:
      English

      Gary Ma is a Cardiologist in San Diego, California. Dr. Ma has been practicing medicine for over 10 years and is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Danon Disease, Aortic Valve Stenosis, and Cardiomyopathy.

      Maryjane A. Farr
      Experienced in Danon Disease
      Advanced Heart Failure and Transplant Cardiology | Cardiology
      Experienced in Danon Disease
      Advanced Heart Failure and Transplant Cardiology | Cardiology

      University Of Texas Southwestern Medical Center At Dallas

      5939 Harry Hines Blvd, 
      Dallas, TX 
      Languages Spoken:
      English

      Maryjane Farr is an Advanced Heart Failure and Transplant Cardiologist and a Cardiologist in Dallas, Texas. Dr. Farr is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Heart Failure, Cardiogenic Shock, Cardiomyopathy, Pulmonary Edema, and Heart Transplant.

      Pablo Pavia-Garcia
      Distinguished in Danon Disease
      Distinguished in Danon Disease
      Majadahonda, MD, ES 

      Pablo Pavia-Garcia practices in Majadahonda, Spain. Mr. Pavia-Garcia is rated as a Distinguished expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Transthyretin Amyloid Cardiomyopathy, Cardiomyopathy, Transthyretin Amyloidosis, Heart Transplant, and Pacemaker Implantation.

      Iacopo A. Olivotto
      Distinguished in Danon Disease
      Distinguished in Danon Disease
      Florence, IT 

      Iacopo Olivotto practices in Florence, Italy. Olivotto is rated as a Distinguished expert by MediFind in the treatment of Danon Disease. Their top areas of expertise are Hypertrophic Cardiomyopathy (HCM), Cardiomyopathy, Fabry Disease, Heart Transplant, and Mastectomy.

      Raymond Y. Wang
      Advanced in Danon Disease
      Medical Genetics
      Advanced in Danon Disease
      Medical Genetics
      1201 West La Veta Avenue, 
      Orange, CA 
      Languages Spoken:
      English

      Raymond Wang is a Medical Genetics provider in Orange, California. Dr. Wang is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 7 (MPS VII, Sly Syndrome), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Pompe Disease, and Adenoidectomy.

      Thomas W. Hopkins
      Advanced in Danon Disease
      Internal Medicine
      Advanced in Danon Disease
      Internal Medicine
      2235 Douglas Blvd., Suite 510, 
      Roseville, CA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Thomas Hopkins is a primary care provider, practicing in Internal Medicine in Roseville, California. Dr. Hopkins is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Pompe Disease, Danon Disease, Obesity, and Hypertension. Dr. Hopkins is currently accepting new patients.

      Showing 1-20 of 1,330

      Last Updated: 01/09/2026

      What is the definition of Danon Disease?

      Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

      When should I see a Danon Disease doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Danon Disease doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Danon Disease doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Danon Disease doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Danon Disease doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

      Why is it important to get a second opinion from a different Danon Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Danon Disease doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Danon Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Danon Disease doctors near me?

      Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Danon Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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